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Thread: What Happened to the Girls in Le Roy (18 teens mysteriously start twitching, tics)

  1. #16
    Elite Member Grimmlok's Avatar
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    Quote Originally Posted by Kat Scorp View Post
    And Grimm, did you skip over the boy with the symptoms for a reason?
    Pfft. Gay, of course
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  2. #17
    Bronze Member r2sweetboys's Avatar
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    Quote Originally Posted by sputnik View Post
    ^^
    18 kids - 17 girls, one boy - begin developing tics, twitches, have seizures, etc.
    most are cheerleaders, honour students, etc.
    parents immediately blame environmental factors, since the town used to be full of factories and there was some kind of railway accident decades ago.
    experts get called in.
    erin brockovitch comes in and starts riling people up and sending in her people to test the school grounds, which is met by resistance from school authorities.
    tests, studies, mri's and months later, the results are supposed to be made public in a town meeting but then they decide not to, to respect the girls' privacy. diagnosis: conversion syndrome, i.e. hysteria.
    of course, people are not happy about this. parents outraged, etc. look for other diagnoses.
    article goes into the history of such occurrences - mass teenage faintings, etc.
    looks into stressors in these kids' lives and stufff they have in common - non-existent or strained relationships with their fathers, family problems, etc.
    intensive interviews with a few of the girls - including 2 best friends, who got sick one after the other and spend all their time together and bond even more over their common illness.
    whether or not this is what's wrong or if hysteria is just what doctors call stuff they don't understand or can't explain.

    pretty fascinating stuff. i suggest you read the whole thing.
    You forgot the most important part. It is speculated that these kids were suffering from PANDAS. Honestly, that was my guess when this story first broke. I had never heard of it until I saw an episode of Mystery Diagnosis where a boy suddenly had all of these strange symptoms, similar to what these kids in New York were experiencing. It is some type of autoimmune response that occurs after a person is infected with strep. It's quite rare, which is why it is strange that it would effect so many at the same time in the same town. I believe the majority, if not all of the kids tested positive for strep or strep exposure and at least some had known strep infections in the fall. It's possible that a few are just jumping on the bandwagon but I think the hysteria diagnosis is BS.

  3. #18
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    ^i saw something on pandas a few years ago on the today show and that was the first thing i thought of when this story came out.
    can't post pics because my computer's broken and i'm stupid

  4. #19
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    Mechtler disputes PANDAS diagnosis for Le Roy girls seen by New Jersey doctor



    It isn't surprising, according to Dr. Laszlo Mechtler, that a doctor from New Jersey who makes a living diagnosing PANDAS came to that conclusion today in the Le Roy illness case.

    Dr. Rosario Trifiletti appeared on the Dr. Drew television show tonight and also released a statement saying that "five of eight girls show evidence of carriage of streptococcus pyogenes and seven of eight show evidence of infection with mycoplasma pneumonia."

    "This is what everybody expected him to do," said Mechtler, who is part of the team at Dent Neurological Institute who diagnosed the girls with conversion disorder.

    Mechtler added that Dent's physicians stand by their original diagnosis and added that other experts are ready to step forward -- including Dr. Susan Swedo, the first doctor to write about PANDAS -- to support the conversion disorder diagnosis.

    "There are enough experts ready to basically dispute his allegations," Mechtler said.

    In his statement tonight, Trifiletti expressly refuted the conversion disorder diagnosis.

    On the Dr. Drew show, Drew Pinsky asked Trifiletti if he consulted with Mechtler, and Trifiletti said flatly, "no," and said there was no plan to consult with him.

    In a tsk-tsk moment, Pinsky said it's bad for patients when "competing" doctors have differing opinions.

    PANDAS is most often associated with what's called a "vaccine injury," when a child gets an infection from a vaccine. But Trifiletti made no mention of vaccines as a cause in either his appearance -- by phone -- on Dr. Drew, nor in his written statement.

    "As with most illnesses, there is a complex interplay of genetic and environmental factors here," Trifiletti said. "As with all illnesses, psychological factors likely play some role as well. All we have done here is provided evidence for exposure to two infectious agents as potential environmental factors."

    Prior to Trifiletti's statement, Mechtler predicted that Trifiletti would tie the infections to a possible environmental cause, calling it "dangerous" for the community.

    "That he is saying this is a PANDAS weakness, related somehow to an environmental toxin, is only going to tie it back to Erin Brockovich," Mechtler said. "This diagnosis is going to be huge for these guys."

    There are two views of Brockovich, Mechtler said. One is that she wants to do good for the community and the other is that maybe she's more focused on a lawsuit and making a name for herself.

    Or, maybe, he said, the truth is somewhere in between.

    "I donít know her and I wonít judge her," Mechtler said "I want to think the best of people and believe the perspective that she wants to help these people. But if they say it's PANDAS and TCE, there's going to be lawsuits."

    Trifiletti said his diagnosis didn't answer all of the questions people have, such as why now, why in this town, why a particular child and not another, but that "infectious exposure is simply 'the straw that broke the camelís back.' "

    On Dr. Drew he said, "I think (streptococcus) is one of the main factors and the most easily reversed factor. I already started talking to families about a treatment based on this."

    Trifiletti said he was recommending a regime of antibiotics and anti-inflammatory agents, and Mechtler said the prescriptions will work for the patients, if they believe in Trifiletti.

    He compared the treatment to a placebo effect and a religious ceremony. Since conversion disorder is a psychogenic illness, if the patients are hyped into believing a treatment will work, it will work.

    And if that's the outcome, that's a good thing, Mechtler said.

    "At the end of the day, all I want is to see the patients get better," Mechtler said.

    Beth Miller, the mother of one of the original 12 girls, told Pinsky that it was easier to accept the PANDAS diagnosis than conversion disorder because her daughter, she said, is a normal, healthy girl who doesn't have any stress in her life.

    Drew asked Miller about a series of operations she has apparently had and whether that was stressful for her daughter, and Miller admitted, "I'm still sick." Pinsky then turned his attention to another guest on the show.

    The state DOH report said all of the original 12 girls had suffered significant stress in their lives, and Mechtler said over the weekend that the stress for some of the girls at some point in their lives is "everything you could imagine and worse."

    Mass psychogenic illness refers to passing of one symptomatic behavior from one person to another. While not all 12 girls originally knew each other, there is a chain of connection among all of the patients diagnosed with conversion disorder.

    Mechtler disputes PANDAS diagnosis for Le Roy girls seen by New Jersey doctor | The Batavian
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  5. #20
    Elite Member MontanaMama's Avatar
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    I never understand when a doctor gets so married to his/her diagnosis that they are rudely dismissive of another point of view.
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    (Replying to MontanaMama) This is some of the smartest shit I ever read

  6. #21
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    mm, don't you know that doctors are neva eva wrong?!
    can't post pics because my computer's broken and i'm stupid

  7. #22
    Elite Member stef's Avatar
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    Quote Originally Posted by sputnik View Post
    ^^
    18 kids - 17 girls, one boy - begin developing tics, twitches, have seizures, etc.
    most are cheerleaders, honour students, etc.
    parents immediately blame environmental factors, since the town used to be full of factories and there was some kind of railway accident decades ago.
    experts get called in.
    erin brockovitch comes in and starts riling people up and sending in her people to test the school grounds, which is met by resistance from school authorities.
    tests, studies, mri's and months later, the results are supposed to be made public in a town meeting but then they decide not to, to respect the girls' privacy. diagnosis: conversion syndrome, i.e. hysteria.
    of course, people are not happy about this. parents outraged, etc. look for other diagnoses.
    article goes into the history of such occurrences - mass teenage faintings, etc.
    looks into stressors in these kids' lives and stufff they have in common - non-existent or strained relationships with their fathers, family problems, etc.
    intensive interviews with a few of the girls - including 2 best friends, who got sick one after the other and spend all their time together and bond even more over their common illness.
    whether or not this is what's wrong or if hysteria is just what doctors call stuff they don't understand or can't explain.

    pretty fascinating stuff. i suggest you read the whole thing.
    thanks for the summary!


    Quote Originally Posted by ManxMouse View Post
    heh, Katie Krautwurst.


    this is a krautwurst:

    "This is not meant to be at all offensive: You suffer from diarrhea of the mouth but constipation of the brain." - McJag

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