Boy, 11, is first child in UK to undergo a mastectomy
1 day ago
(© The Telegraph) Lewis Deakin ,11, is first child in UK to undergo a mastectomy
A schoolboy who suffers from a rare condition which causes him to grow benign tumours is the first child in the country to undergo a mastectomy.
Brave 11-year-old Lewis Deakin, from Wythenshawe, Manchester, suffers from a rare condition which causes him to grow benign tumors in the arteries in his chest.
The youngster, who suffers from arteriovenus malformation, recently had a mastectomy to remove his right pectoral muscle at Birmingham Children's Hospital - where he receives specialist treatment.
But Lewis - who doesn't let his condition phase him and now even tells his pals at school that his operation scar is actually a shark bite.
Mother Victoria said: "I would just crumble if it was me but Lewis is really good.
"It was a really big lump on his chest and it even stretched out his clothes. One teacher thought he had a beanbag up is top.
"He is the only child in the country that has had a mastectomy. As he gets bigger they will be able to reconstruct his chest.
"He was a bit daunted by it all at first and he wouldn't show anyone the scar. But now he tells all the girls at school 'I've been bitten by a shark'. He says it's a real pulling machine!"
Lewis, of Benchill, baffled doctors when the tumors first began to grow in his chest three years ago.
And it wasn't until he saw consultant Hiroshi Nishikawa at Birmingham Children's Hospital that he was diagnosed with AVM.
Victoria and father Wayne Deakin have since made the 160-mile round trip to the Midlands with Lewis dozens of times.
And the Newall Green High School pupil has had 15 surgeries in the last two years.
Mother-of-four Victoria said: "We sometimes have to leave the house at 5am to get there in time if he's having surgery.
"I recently had a baby and I traveled over there with him all the way through my last pregnancy.
"It turned my life upside down. I have to leave my other two sons and daughter behind to travel with Lewis.
"Me and Wayne slept on chairs at the side of his bed when he had the mastectomy last year."
Lewis spent five days in hospital after his surgery in April 2014 but made a speedy recovery and was able to use his arm normally again within a month.
However he still requires regular check ups and is due to have a growth in the middle of his chest tested later this month.
Victoria said: "You would look at Lewis and think there is nothing wrong with him but there's a lot wrong unfortunately.
"I don't think people really know about this condition. The only charity I have come across is AVM Survivors. There's no awareness or advice for people living with it except on Facebook."