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Thread: Daryl Hall Lyme Disease Survivor

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    Elite Member Witchywoman's Avatar
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    Default Daryl Hall Lyme Disease Survivor

    The Healthline Interview: Daryl Hall

    Pop legend Daryl Hall talks about living with Lyme disease, why he is "ticked off" by the local deer population and how he stays youthful at 65.
    Singer/songwriter Daryl Hall is a soul survivor in every sense. With John Oates he formed Hall & Oates, the most successful recording duo of all time, scoring a slew of No. 1 singles including ďRich Girl,Ē ďKiss on My List" and "Sara Smile" across six consecutive multi-platinum albums in the 70s and 80s.

    More recently he has reinvented himself for the digital age by collaborating with a mix of legends and newer performers including Smokey Robinson, The Doors, Todd Rundgren, Train, Rob Thomas, Chromeo and Eric Hutchinson on his own WEBBY award-winning variety show Live From Darylís House. But Hall's greatest challenge has been met in his personal life. On the heels of his latest release Laughing Down Crying, Hall spoke candidly to Healthline about his five-year battle with Lyme disease, how he successfully manages the enigmatic illness and standing strong and remaining youthful at 65.
    Daryl, you were diagnosed with Lyme disease about five years ago, and youíre always willing to speak publicly about it. Letís start from the beginning. How did you contract Lyme disease?
    I got it the way everybody gets it. Iíve lived in the country for many, many years Ė in the New York / Connecticut border; itís a hotbed of deer and other wildlife animals. Iíd been bitten over the years so many times, and I think it finally reached a critical mass and I crashed and burned about five years ago.
    What exactly were your symptoms?
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    I used to think I had allergies, because I used to feel feverish. Iíd take my temperature and sometimes it would be below normal; sometimes it would be a little above normal. And I remember thinking it was a little strange, but I thought that fever-type feeling was just my body reacting to allergies.
    And then I started getting strange allergies to things I was never allergic to before. I suddenly got this really outrageous allergy to celery, where my eyes and face swelled up like a pumpkin, and Iíd been eating celery my whole life, so I thought that was strange. Another time my left arm and hand started shaking and I started getting tremors. Then this weird thing started happening with alcohol. Iím not a heavy drinker, but I suddenly had a major sensitivity to alcohol, where Iíd have one drink and I would go to the moon.
    And then one day I got a really high fever, my neck stiffened up, I had all kinds of aches and pains and I got really bad tremors. I didnít know what it was, so I went in for tests and ehrlichia Ė which is a tick disease Ė came up in that initial test result. About a week after that, I learned that I had six or seven tick-borne diseases.
    Learn more about the symptoms of Lyme disease.
    Daryl Hall and John Oates (Photo courtesy of Mick Rock) What kind of reaction did you have after discovering your diagnosis?
    Truthfully, my first reaction was relief, because I didnít know any better. I remember thinking, 'OK, now I know what I have; I have Lyme disease! Huh, that doesnít sound so serious; now I just need to get rid of it.' Let me tell you... I had no idea.
    How did you proceed from there and when did you learn of the severity of the disease?
    I was still under the impression that it wasnít a big deal, but I wanted to take care of it right away. I went online to do research and then I went to see a doctor who was one of the best in his field at the time. He gave me the proper tests and explained to me exactly what having Lyme disease was all about, what it entailed and what my future was going to be like.
    I have to be honest; it was all pretty depressing. During the time I was going to him, Iíd see some of his patients in the waiting room and what I saw was just nightmarish. These were people who were crying, screaming, their hair was falling out, all sorts of stuff. What I was seeing in those people were the worst-case scenarios of this disease and it was scary.
    Eventually that doctor moved into the field of research, so I got a new doctor and Iíve been with him ever since.
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    Youíve said that you went through the worst parts of the disease right after you were first diagnosed. How does it affect you today?
    Sometimes it doesnít affect me at all, but then it comes back in phases. Right now Iím in a phase where it sort of comes and goes with a little more regularity, and when I say that I mean that I get something called a herxheimer reaction, which is sort of a roving group of symptoms. It affects different people in different ways and it even affects me in different ways each time I get it.
    To give an example, about a month ago I suddenly had such arthritic pains in my legs that I could hardly sleep. That lasted about a week and then it went away. After that I started getting heart palpitations, and then that, too, went away. And then I started getting headache-type feelings, but then that went away.
    So all these symptoms, they rove; they move around. So if someone has symptoms and then they change or keep changing, it might be a good idea to get tested for Lyme disease because the symptoms mimic so many other things.
    Yeah, I was just going to say that all of the things you just mentioned could be symptomatic of other things. Do you ever worry that any of these symptoms are reflective of an unrelated illness?
    See, now thatís the weird thing about having this disease. I mean, how do you know? Or how do you not know? When someone has heart palpitations, only by going to a cardiologist would they know whether they have a bad heart or not. And Iíve been to a cardiologist and I know I donít have a bad heart, and I also know that Iíve had heart palpitations before and I know it goes away.
    So Lyme disease is definitely something you start learning to live with, and usually if a symptom mimics another symptom Ė no matter what it is Ė and then it moves, and it does something else, it's usually not the real symptom of another thing; it usually has to do with a tick disease.

    (Photo courtesy of Mark Maglio)
    This is fascinating. After you were first diagnosed, was there ever a time when you couldnít perform?
    Yeah, right after I was first diagnosed I had to cancel a tour. When it first hit me, it was so bad I had to go on medication right away and was really down. I tried really hard to work through it in the very beginning and I made it to a show out in Phoenix, but I collapsed. Thatís when I knew I had to stop. So I did stop, and I had to cancel the tour and I was sort of out of commission for a couple of months and taking pretty heavy doses of various medications.
    But then I was absolutely able to come back, and I would consider it maintained and under control now. As I said, I do have various flare-ups, but they donít seem to be debilitating; these flare-ups arenít something that I canít live with onstage. I can handle it.
    I, myself was raised in rural New Jersey, and because of the large deer population the public was warned about Lyme disease. But the messages were limited to basic prevention; we were just told to make sure we checked for ticks. After hearing details of the disease right now Ė much of it for the first time Ė Iím curious if you think thereís enough public awareness around the disease.
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    There is so much controversy and confusion around Lyme disease, and I think that anyone who has it Ė including myself, cannot understand why that is.
    Because of the confusion and controversy, all kinds of theories come up; everything from governmental to insurance conspiracies, etc. I donít truly know the answer, but I do think there may be some people who do have a vested interest in keeping it quiet. Lyme disease is not recognized by the Center for Disease Control as a chronic illness, and for anybody living with Lyme disease, the fact they donít recognize it as such is almost a bad joke.
    I donít really understand why the CDC has not recognized it, and nobody has ever given me an answer that satisfies me as to why this has not really been addressed or recognized. Everyone who suffers from Lyme disease is sort of on their own.
    Learn which areas are hotbeds for Lyme disease.
    You mentioned something in an interview a few years ago about deer control in relation to how it could help control Lyme disease.
    I talked about that on The Howard Stern Show, and before I talk about it here, I want to point out that someone might refute this story and reiterate that Iím just repeating the story I had heard.
    OK, I heard that a few years ago people were coming down with Lyme disease left and right on Monhegan Island, in Maine, and that the state took the radical stance of taking control of the situation, and they did that by killing all the deer. And I heard that once they did that, it pretty much stopped the spread of the disease in that area.
    Iím not sure if thatís true, but the point is that if you get rid of the deer, you can help get rid of the disease. See, ticks really need larger animals to complete their breeding cycle, and they canít really do it as well on mice and chipmunks, so deer really are the biggest problem we have in terms of this disease in the United States. The average deer has about 1,000 ticks on them; they are literally riddled with ticks.
    Whenever youíre on The Howard Stern Show, you and he make jokes about how much you hate deer because of your disease. Is there anything in the world you hate more than deer?
    Actually, I donít hate the poor deer! I feel sorry for the poor deer! I just hate it when they get close to me! [Laughs].
    [Laughing]. OK, weíll end on a different topic. I just saw you perform and was shocked to learn you are 65- years-old. Youíve aged amazingly well. How do you do it?
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    Well, thank you. But Iím telling you, itís all in the genes! It just runs in the family. I just have great parents! My parents are very, very young people in their minds and their bodies, just like my siblings, and I inherited their genes. I seriously cannot take any credit for that.
    But I do also think that oneís mental state has a lot to do with it, and I think being really active, doing the thing I do and being the kind of person that does the job that I do is good for me in terms of my physical activity. But what I do for a living also keeps my brain firing like a cannon!
    Check out the top 10 foods for healthy skin.
    Daryl Hall with Rob Thomas (Photo courtesy of Mark Maglio)
    Last question. On your Web series, Live From Darylís House, youíve had an incredible roster of guest artists (The Doors, Rob Thomas, Todd Rundgren, etc.) come to your country house and perform with you. It makes viewers feel like they live next door and can just hang out on their porch and watch a free show. Who would be your dream guest?
    To be honest, just about everybody I ask shows up! Seriously, everyone usually says 'yes,' but itís just the logistics of getting everyoneís schedules on track. So I donít really have a wish list. I know people want to come and play; itís just the logistics.
    But I think having Bob Dylan come over and play would be interesting, just because it would be weird and interesting all at the same time. Daryl Hall Talks About Living with Lyme Disease It's a god awful disease I know a few people who have it and I watched one person die of it.

    How did you proceed from there and when did you learn of the severity of the disease?
    I was still under the impression that it wasnít a big deal, but I wanted to take care of it right away. I went online to do research and then I went to see a doctor who was one of the best in his field at the time. He gave me the proper tests and explained to me exactly what having Lyme disease was all about, what it entailed and what my future was going to be like.
    I have to be honest; it was all pretty depressing. During the time I was going to him, Iíd see some of his patients in the waiting room and what I saw was just nightmarish. These were people who were crying, screaming, their hair was falling out, all sorts of stuff. What I was seeing in those people were the worst-case scenarios of this disease and it was scary.
    Eventually that doctor moved into the field of research, so I got a new doctor and Iíve been with him ever since.
    Youíve said that you went through the worst parts of the disease right after you were first diagnosed. How does it affect you today?
    Sometimes it doesnít affect me at all, but then it comes back in phases. Right now Iím in a phase where it sort of comes and goes with a little more regularity, and when I say that I mean that I get something called a herxheimer reaction, which is sort of a roving group of symptoms. It affects different people in different ways and it even affects me in different ways each time I get it.
    To give an example, about a month ago I suddenly had such arthritic pains in my legs that I could hardly sleep. That lasted about a week and then it went away. After that I started getting heart palpitations, and then that, too, went away. And then I started getting headache-type feelings, but then that went away.
    So all these symptoms, they rove; they move around. So if someone has symptoms and then they change or keep changing, it might be a good idea to get tested for Lyme disease because the symptoms mimic so many other things.
    Yeah, I was just going to say that all of the things you just mentioned could be symptomatic of other things. Do you ever worry that any of these symptoms are reflective of an unrelated illness?
    See, now thatís the weird thing about having this disease. I mean, how do you know? Or how do you not know? When someone has heart palpitations, only by going to a cardiologist would they know whether they have a bad heart or not. And Iíve been to a cardiologist and I know I donít have a bad heart, and I also know that Iíve had heart palpitations before and I know it goes away.
    So Lyme disease is definitely something you start learning to live with, and usually if a symptom mimics another symptom Ė no matter what it is Ė and then it moves, and it does something else, it's usually not the real symptom of another thing; it usually has to do with a tick disease. (Photo courtesy of Mark Maglio)

    This is fascinating. After you were first diagnosed, was there ever a time when you couldnít perform?
    Yeah, right after I was first diagnosed I had to cancel a tour. When it first hit me, it was so bad I had to go on medication right away and was really down. I tried really hard to work through it in the very beginning and I made it to a show out in Phoenix, but I collapsed. Thatís when I knew I had to stop. So I did stop, and I had to cancel the tour and I was sort of out of commission for a couple of months and taking pretty heavy doses of various medications.
    But then I was absolutely able to come back, and I would consider it maintained and under control now. As I said, I do have various flare-ups, but they donít seem to be debilitating; these flare-ups arenít something that I canít live with onstage. I can handle it.
    I, myself was raised in rural New Jersey, and because of the large deer population the public was warned about Lyme disease. But the messages were limited to basic prevention; we were just told to make sure we checked for ticks. After hearing details of the disease right now Ė much of it for the first time Ė Iím curious if you think thereís enough public awareness around the disease.
    There is so much controversy and confusion around Lyme disease, and I think that anyone who has it Ė including myself, cannot understand why that is.
    Because of the confusion and controversy, all kinds of theories come up; everything from governmental to insurance conspiracies, etc. I donít truly know the answer, but I do think there may be some people who do have a vested interest in keeping it quiet. Lyme disease is not recognized by the Center for Disease Control as a chronic illness, and for anybody living with Lyme disease, the fact they donít recognize it as such is almost a bad joke.
    I donít really understand why the CDC has not recognized it, and nobody has ever given me an answer that satisfies me as to why this has not really been addressed or recognized. Everyone who suffers from Lyme disease is sort of on their own.
    Learn which areas are hotbeds for Lyme disease.
    You mentioned something in an interview a few years ago about deer control in relation to how it could help control Lyme disease.
    I talked about that on The Howard Stern Show, and before I talk about it here, I want to point out that someone might refute this story and reiterate that Iím just repeating the story I had heard.
    OK, I heard that a few years ago people were coming down with Lyme disease left and right on Monhegan Island, in Maine, and that the state took the radical stance of taking control of the situation, and they did that by killing all the deer. And I heard that once they did that, it pretty much stopped the spread of the disease in that area.

    Iím not sure if thatís true, but the point is that if you get rid of the deer, you can help get rid of the disease. See, ticks really need larger animals to complete their breeding cycle, and they canít really do it as well on mice and chipmunks, so deer really are the biggest problem we have in terms of this disease in the United States. The average deer has about 1,000 ticks on them; they are literally riddled with ticks.
    Whenever youíre on The Howard Stern Show, you and he make jokes about how much you hate deer because of your disease. Is there anything in the world you hate more than deer?
    Actually, I donít hate the poor deer! I feel sorry for the poor deer! I just hate it when they get close to me! [Laughs].
    [Laughing]. OK, weíll end on a different topic. I just saw you perform and was shocked to learn you are 65- years-old. Youíve aged amazingly well. How do you do it?
    Well, thank you. But Iím telling you, itís all in the genes! It just runs in the family. I just have great parents! My parents are very, very young people in their minds and their bodies, just like my siblings, and I inherited their genes. I seriously cannot take any credit for that.
    But I do also think that oneís mental state has a lot to do with it, and I think being really active, doing the thing I do and being the kind of person that does the job that I do is good for me in terms of my physical activity. But what I do for a living also keeps my brain firing like a cannon!
    Check out the top 10 foods for healthy skin.
    Daryl Hall with Rob Thomas (Photo courtesy of Mark Maglio)
    Last question. On your Web series, Live From Darylís House, youíve had an incredible roster of guest artists (The Doors, Rob Thomas, Todd Rundgren, etc.) come to your country house and perform with you. It makes viewers feel like they live next door and can just hang out on their porch and watch a free show. Who would be your dream guest?
    To be honest, just about everybody I ask shows up! Seriously, everyone usually says 'yes,' but itís just the logistics of getting everyoneís schedules on track. So I donít really have a wish list. I know people want to come and play; itís just the logistics.
    But I think having Bob Dylan come over and play would be interesting, just because it would be weird and interesting all at the same time. Daryl Hall Talks About Living with Lyme Disease It's a god awful disease. I know a few people who have it and watched one die of it.

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    Elite Member McJag's Avatar
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    Poor man. From a stupid tick!
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    He looks great. Love Hall and Oates and I like watching his show.
    I am going to come and burn the fucking house down... but you will blow me first."

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    Glad to hear its tolerable now.

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    Elite Member ManxMouse's Avatar
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    I love this guy, glad that he's got such a cool thing going. I know of someone right now who's suffering through Lyme disease and another rare infection, and it sounds like it's an absolute nightmare.
    For your viewing pleasure, this very weird, 'luded out Hall and Oates video:

    Bluebonnet likes this.
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    "Private Eyes" - one of my favorite songs of all time. When I hear it, it is like I'm literally back in high school.

    Great interview, by the way. He is a very articulate guy, and I can see why other musicians are willing to come and hang out with him.

    One thing that I think is kind of ironic is that when Hall & Oates were at their peak, Daryl Hall seemed kind of like an overgroomed dandy to me. Now, he's this grizzled dude with a full beard. I have a difficult time reconciling the two images.
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    Quote Originally Posted by MohandasKGanja View Post
    "Private Eyes" - one of my favorite songs of all time. When I hear it, it is like I'm literally back in high school.

    Great interview, by the way. He is a very articulate guy, and I can see why other musicians are willing to come and hang out with him.

    One thing that I think is kind of ironic is that when Hall & Oates were at their peak, Daryl Hall seemed kind of like an overgroomed dandy to me. Now, he's this grizzled dude with a full beard. I have a difficult time reconciling the two images.
    Do you know, I have seen him in both those phases as well, and I rather prefer him as the grizzled dude. I'm a grizzled old woman rapidly approaching his age, though, so perhaps I can relate.

    Ironically, before I read this article and learned that Darryl Hall has Lyme Disease, I listened to a couple of tunes that he performed unplugged. For the life of me, I can't remember the one song I really enjoyed...and who he performed it with. If I find it, I'll post it. I do like the other one I listened to, though, with Todd Rundgren.

    It's a perfect song for his vocal style, don't you agree?

    It Wouldn't Have Made Any Difference

    I apologize for being too thick to know how to embed videos...

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    Quote Originally Posted by McJag View Post
    Poor man. From a stupid tick!
    No kidding! A tiny bug can cause all that havoc to someone's system...that ends any future camping trips for me, and tromping through the woods innocently.

    *Phew!* I ought to consider myself very lucky. I used to camp and hitch-hike all over the place a decade or two ago; I'm lucky that the ticks didn't like me!

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    Elite Member Brah's Avatar
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    Shit, I never realized Lyme Disease was that serious, and I had it once. I was feeling sick and went to the doctor, and the blood tests came back with Lyme Disease, but in the incredibly early stage, like that I'd only contracted it 2 weeks before the test, which would be before symptoms showed. So my symptoms were just a cold, a coincidence. Didn't realize what I was close to, if I hadn't gotten a cold and seen a doctor.

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    You know this is scary to me because approx three weeks ago I woke up one morning with a tick attached to my face under the chin part. I pulled it off asap but the mark is still there red and raised. I went to the doctor and she said no cases of lymes disease in Australia that she knows of. I feel fine otherwise but I wish this damn sore would heal?!?!?!

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    Definitely scary, I'm a former camper. I've always tried to be careful about checking for ticks though. I'm glad he's doing relatively better though.

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    Quote Originally Posted by Voodoo Child View Post
    You know this is scary to me because approx three weeks ago I woke up one morning with a tick attached to my face under the chin part. I pulled it off asap but the mark is still there red and raised. I went to the doctor and she said no cases of lymes disease in Australia that she knows of. I feel fine otherwise but I wish this damn sore would heal?!?!?!
    Did you remove the tick in its entirety? Sometimes the head/mouth gets left behind.

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    It sucks that the Lyme carrying ticks are tiny...like half a poppy seed tiny, so they are hard to find on yourself if you have one. The bigger ones are easier to spot, but they don't carry Lyme.
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    I didnít know what it was, so I went in for tests and ehrlichia Ė which is a tick disease Ė came up in that initial test result. About a week after that, I learned that I had six or seven tick-borne diseases.
    .... I knew of Lyme disease, but wasn't aware that ticks carried multiple diseases that could infect humans.
    Happy to hear he's getting treatment/feeling better....

    Edit: Growing up in Cali, I wasn't really warned/made aware of ticks or how to treat a bite and so on... so I googled some info about them and found "Lyme Cases by State" ...




    CDC - Cases by State - Lyme Disease
    Last edited by SoCalMarie; August 17th, 2013 at 11:16 PM.

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    Yikes on NJ and PA!!
    Is it Happy Hour yet?

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